Thursday, December 29, 2011

Alliteration Appointment

So delivery is scheduled for the ninth at noon. I was sitting there at my doctor's desk while he was on the phone with the hospital and he puts his hand over the mouthpiece and says "How about the ninth at noon?"

First I want to explain that at all of these many appointments it has been all I can do to only be halfway there. While doctors have been describing horrible procedueres or outcomes or facts, my husband listens intently and asks questions and I just nod but find myself staring out the window at a pair of hawks chasing each other through the city. Or as a doctor is talking to me I start wondering what type of eye shadow she has because I really like the color but she has much lighter skin so would it look as good on me?

It's either that or I have to pinch my arm to keep from crying. I switch back and forth. I have the bruises on my arm to prove it.

Anyway. Back to the story, my doctor covers the mouth piece and says, "the ninth at noon?"

The thoughts that go through my head are as follows:
- I like the way the n's sound together. 'N'inth at 'N'oon.
-My cell phone minutes roll over on the ninth which is kind of irrelevant because I ignore most phone calls these days.
-Doesn't it feel strange to be scheduling the death of your child? The ninth at noon? Sounds good. Let me just pencil it in my calendar.

Anyway. That's the plan unless Gracie Belle has her own plan.


We did have a good Christmas. The boys were so much fun. And we had our own little Christmas miracle for Gracie.

We (and when I say we, I mean my mom), has been tirelessly going to cemetaries to find a place for little Belles. No matter what day she went it always rained. Appropriately I guess. All of the cemeteries were too big, or too expensive, or on a busy busy road, or just wrong. And then we found this little cemetary close to us. It's really old and a little overgrown but on a hill on a quiet country road and it feels just like a cemetary should feel.

My mom inquired about it and the owner said the cemetary was full and he apologized but there was nothing to do about it.

He clearly didn't know my mom. She hand wrote him a letter explaining the situation and I kid you not said, "She is just a little thing, we promise she will be no trouble at all." Wasn't there a tiny little spot we could fit her in?

On Christmas Eve he called and said they found a little place for her with this really old family (1800's) who had five infants that died at birth and they could put her with them.

I know this might sound morbid but it truly was our Christmas miracle to have the peace that she would have a place to lay and not only that but she would have five little friends to be with.

My dad is building her a little coffin with her name engraved on it and beneath it is the phrase, "Sleep in Heavenly Peace". For Kendall and I "Silent Night" has kind of become her song and though we can't really sing it right now without tears it brings us peace and is more like a lullaby than anything.

The coffin is lined with the softest softest material and we are going to fill the bottom with pink rose heads so she can lay on a bed of roses.

I think we will have a little funeral at our church before, but the burial is probably just going to be immediate family.

Another interesting thing about the cemetary is you have the option to dig the grave yourself.
Kendall wants to. And while I thought it was odd at first, it is more meaningful now to be able to prepare a little place for her with his own hands and heart.

Thanks to everyone for prayers and kind notes and thoughts. Everyone has hard things and I appreciate those who take the time to think of us while we are going through one of ours.

14 comments:

  1. I am glad to hear you found her such a perfect spot to rest. I wish I were going to be able to make it. The coffin sounds beautiful and I love the idea of her resting on a bed of flowers. I miss you Em

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  2. Hey Emma-

    I've been silently following your blog, having a million things to say and having no idea how to even express them. Things like... "My heart hurts for you"..."I cry and hug my kids every single time I read an update"... "I absolutely regret not taking the time to get to know you better when we had a chance" ... It all just sound so trite. Just know they are all true and more.

    I have a good friend that has a little boy that just turned one with Trisomy 9. She is a really great mom and I know would be a great support and listener to you. No pressure, I just wanted to make sure you got her info in case you were interested!

    Take care, Emma.

    Your friend,
    Michelle Kerr

    Here's Erin's FB: https://www.facebook.com/dontmesswithtx21
    And her blog: http://erinandbean.blogspot.com/

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  3. Hi there,
    My name is Erin and Michelle posted a comment above this one regarding me and my son. I would love to speak with you about any questions you have or just talk with someone that knows what you are going through. My son does not have full Trisomy but Partial Trisomy 9 (about 75% of an extra 9th chromosome). My specialists told me that my son would probably not make it and also told me that he would probably have Hypoplastic Left Heart Syndrome. I was terrified, began to plan a burial as well. It's a terrible terrible place to be. I have wonderful supports on facebook and through email with Trisomy 9 support groups and would love to talk to you about them as well. They are an amazing group of people, some of them have lost children and some haven't. Please feel free to contact me at the information that Michelle provided in her comment. Also, my email address is dontmesswithtexas21@yahoo.com

    Please know I'm thinking about you all and praying for you and baby girl!

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  4. I'm so glad that little Gracie received such a beautiful Christmas miracle- the cemetery sounds beautiful, and all of the details sound perfect. I cannot read your posts without tears filling my eyes- both of sadness and of love for you. I am always thinking of you, and especially over the next couple of weeks, you will be in my heart and prayers. xo

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  5. Emma, we love you guys, we love Gracie Belle. She has already left such a powerful testimony filled mark in our lives and she isn't even here yet! I can't tell you the amount time times that we pray for you. I am so sad that I won't be able to give you a hug, Spencer will have to deliver it for me. I love you will all of my heart and will be anxiously waiting with the rest of the family to hear about her birth.

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  6. I just read your post for the first time out loud to Brandon. We just sat there, said nothing, but felt the powerful spirit brought into our hearts and home by the things you shared. Your Christmas Eve miracle of securing a sacred and peaceful place for Gracie in that little spot is surely a tender mercy in the midst of trials and suffering. I pray more of those come your way during and after her birth. I will always think of you and Gracie now whenever I hear Silent Night. Love and miss you Emma.

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  7. We think of you often. Your post made me and my husband tear up. You are so brave and loving. God bless you and your family.

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  8. Emily, the minute we stepped into that old cemetery we felt how different if was from the other depressing ones we had seen. I am so glad your mom's stubborn streak paid off- that and her writing skills. Please know you and your family are in all our prayers and many many of my daily thoughts. I love you. Gracie is blessed to have you for her mom for eternity.

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  9. Emily,

    I just want you to know that you and your family have strengthen me as you have shared your experiences. I am sure it takes so much courage to share such personal moments. I am thinking about you and your family.

    With Love,
    Mandy Moore

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  10. Oh Emma, hang in there. This insane roller coaster is at the top of the hill- its time to throw up your hands and scream. You'll get through this- and there will be a lot of us waiting for you to love and support you through and again once the ride is over. xoxo

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  11. Sorry "Emma" not Emily. Supper type-o.

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  12. Thinking of and praying for you, Gracie, and your family. Love and miss you!

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  13. Oh my heck Emma. You are so strong. So amazingly strong. You and your family are always in our hearts and prayers.

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